Wednesday, December 30, 2009

Did you know that Angels are among us?

Angels are from heaven,
We already know.
But where are they at,
Only God knows.

Sometimes they hide
And do miracles so great,
But sometimes their
Right there in plain sight.

How can we tell
An angel is beside us?
Look for the goodness
And innocence all around.

It may surprise you to find out
that each one of us has our own,
One that is there guiding
And protecting us all day long.

No it is no one you would suspect
Or even think of;
However, to know they are all around
Can give us all a little peace in our heart.

God sent one special angel
In the form of someone with autism.
She taught so many how to love
Without a word to be spoken.


Her angelic innocence
Is what makes her remarkable.
Her never ending love and kindness
Can show anyone how to live

God sent this angel
to take care of us all.
To be the one to follow
And show us God’s way.

Then one day,
God decided to bring her home.
Those of us on earth
Were heartbroken and sad.

Even though she is no longer
Here on this earth,
It gives us peace to know,
She’s actually watching over us every day of our life.

Now, isn’t it good to know
Angels are among us,
Guiding us through
Till we can be together again someday.

Tuesday, December 22, 2009

HER FINAL DAY

It is a beautiful day by anyone’s account. The date is July 22, 2008. The sky is crystal clear and Caribbean blue. It is around 80 degrees and only getting hotter by the hour. A typical summer day in Chicago. The day has one vital flaw: It is the day I will bury my one and only child.

Her name is Mariana (Mar-ē-awe-na). She was 8½ years old when she left this earth on July 16th. I guess if you are getting ready to permanently say good-bye to the one person who has completely occupied your time and has helped define who you are today, at least it is a good day weather wise.

I get up, take a shower, and get dressed in my black sleeveless top with my black pinstriped pants. My stomach is in knots and I can hardly eat. We head out to the funeral home around 10am.

Even in death, Mari, as we like to call her, is the center of attention today and why everyone is coming. She lays there at the front of the room with her casket open for everyone to be able to say their good-byes. At this point, I am holding it together. I can still see her even though her spirit is gone from her body. She just looks so peaceful like she is sleeping with her Backyardigans and Wonder Pets beanie baby friends as they keep her company in the casket. When you look at her it’s like she will wake up at any moment and say, “Juice please.”

Almost everyone we care about has come to say their good-byes. My grandpa, my mom, my dad, my brother Erik and one of his daughters Athena, my sister Jenny, my husband Keith’s uncles Ken, Phil and Bob and his aunt Pat all flew in from the west coast. Everyone is still in complete shock because just a little over three weeks ago Mari was a perfectly healthy little girl that had her life taken away by E. coli.

The service could not have gone more perfectly. Pastor Steve, Pastor Bill and Army Chaplain McClerean spoke. Friends and family share memories. Jennifer, a woman from our old church, sings “I Raise You Up” by Josh Groban and “Praise You in the Storm” by Casting Crowns. The second song’s lyrics are the perfect words to close out her memorial service that nothing else is said after this.

Keith and I are in the front row sitting on a couch with our parents beside us. The Funeral Director starts with the back row so everyone can come forward to walk by Mari’s casket and say good-bye if they choose. It is row after row of people who come forward. Some are friends. Some are family members. Some are from my husband’s Army battalion. Some are teachers and aides that have all worked with Mari over the years in school. Some are a part of our church family in DeKalb. There are even a couple of people from Children’s Memorial Hospital that came to pay their respects to our believed little one. I think what touches me the most is the love all of these people have for a little girl who never understood any of that and yet she was able to touch everyone of their lives with her loving innocence to those around her. Some of these people stop while others just walk by. There had to be well over 200 people who came to her funeral that day. Finally our row is the last one left. First my mom, then my dad, then Keith’s mom and dad all get up, go over to the casket, and say their own good-byes to our believed angel.

Keith and I are the only ones left. It has finally hit me now. The dam that had been holding back my tears finally breaks and they pour out like a relentless flood that is utterly unstoppable. We finally stand up and walk over to where we have one of her very favorite blankets on display. It is her Precious Moments one. We take it down and bring it over to her casket. We then lay it on top of her like we are tucking her in one more time for what will be literally be our very last time. We take her Backyardigans and Wonder Pets friends and arrange them in her casket. In a way it’s like they will be watching over her while she “sleeps.”

I stand there and tell her, “I miss you baby girl. I love you so much. Mommy and Daddy so wish you were still here with us. Our lives will never be the same without you here with us. I love you with all my heart and I ache for you to be here with me. Just know you will never be forgotten. You will always be our precious baby girl.”

I go and sit back down on the couch and start to uncontrollably cry. Keith holds me. Keith’s dad is there to comfort me. Shelly, my best friend who is like a sister to me, comes back in the room and comforts me as well. I think we must have sat there for 10 to 15 minutes before Keith and I finally get back up and walk over to the casket. We say good-bye one last time, kiss her on the forehead, and then walk out of the room.

We only needed four pallbearers for Mari’s casket but we chose to have six instead so we left no one out. They are my brother Erik, two of Keith’s brothers Ruben and Michael, two of his brother-in-laws David and David, and our nephew Devin. They are called back into the room by the Funeral Director. He does whatever he has to so he can prep her casket by securely closing the lid and getting her ready for burial.

When they all come back out they are now carrying her casket. I head out of the building first with them not too far behind me. I stand behind the hearse and watch as they put her in. I do not take my eyes off once. Everyone now gets in the vehicle they will be riding in so they can follow the hearse. There are at least 20 to 25 vehicles taking the hour drive to the cemetery with each one filled to capacity. I think it is amazing how over 75 people followed us to the cemetery for a little girl who was 8 ½ years old while most adults do not have half that many people show for theirs. I guess it goes to show any of us how anyone out there can truly touch the lives of those around them if they will allow it. The whole way there, my eyes are glued on the hearse in front of us as I can see her casket in the rear window.

We finally get to the pavilion type area at the cemetery where a few short words are spoken by the pastors and Army chaplain. We pray and it is over. I just feel so numb. Keith says we should go mingle with everyone since they came all this way. So we get up and talk to a couple of people. Behind me I notice the pallbearers getting ready to roll her away. At this point, it does not dawn on me what this means.

I am sort of talking to someone when all of a sudden I realize that they are rolling Mari to the car that will take her to where she will be laid to rest. They are about half way to the vehicle when I make a b-line for her casket. I watch as they stick her into the vehicle. I walk up and put my hand on her casket. I immediately fall apart and just stand there crying for at least 5 minutes. Everyone starts to gather around me. The Funeral Director tells everyone to please step back and give me my space. I know once they close that door and drive away, reality will sink in that she is really gone.

I finally tell them it’s ok to close the door. I walk away but can only make it about 10 feet when my legs suddenly feel like Jell-O and I can no longer walk. My legs collapse from underneath me and I fall straight to the ground balling. It seems like everyone swarms around me all at once. Finally, Keith is called and he comes over to take care of me. Then Shelly comes over to my other side as well. I can’t move. I can’t believe Mari is really gone. The utter sadness I feel at this moment goes so deep. I know from this point on my life has been forever changed. They are able to finally help me to my feet and get me back into our limo for the ride home.
The day my daughter died I also died with her. A new Kristena has been reborn in her place. I was a stay at home mom taking care of our only child with severe autism to now having no children at home. I have had to try to redefine who I am today. Every day is a struggle with some being harder than the rest. The one thing that gives me peace is to know that Mari and I will be reunited again one day soon up in heaven.
The End

Monday, December 21, 2009

Contemplating Christmas

(I actually wrote this in my notebook on December 17)

T'is the season of joy, happiness & love, or at least that is how it used to be.

Last year, what would have been our first Christmas without Mari, we got to escape and go to Hawaii. I did not have to deal with the glaring reality of Mari not being here.

Now this year has come. It is technically our 2nd Christmas season. But the reality is so different. This is like it is our first one without her instead.

It feels like ever since Thanksgiving Day I have been just getting by. Almost like a shell of a person who keeps pushing me through each day. Then yesterday came and now Mari is officially gone for 18 months. 18 months, it just does not seem real sometimes.

And now everyone is in the throes of Christmas. Holiday parties, cookie parties, get togethers, decorations, and what not. This used to be my most favorite time of the year. I couldn’t wait to pull out the Christmas tree and decorate it the day after Thanksgiving. I would decorate both the inside and the outside of the house. It just felt so festive.

With Mari, she was one of the most bought for children with presents under the tree. I would spend way more than I should on just one child but she was our only child. Some might say that I spoiled her. But I say you really can’t spoil a child with autism as they don’t understand being spoiled.

Christmas morning was just so magical. I can remember that last Christmas not even being able to put the presents under the tree because she had finally learned that opening presents brought her things she knows she wants.

We would go from one present to the next. Sometimes we would have to take away what she opened as she wanted to play with whatever she had. It was just so much fun to watch the little twinkle in her eye and the excitement on her face.

Now to think about decorating brings me utter sadness. To think about Mari opening her presents is now nothing but memories. Memories that are bitter-sweet but still just memories. We will never be able to add to our memories as Mari is gone.

So now I sit here just thinking of her trying to get by and through each day. Today I needed to find an empty notebook to write in. I found one and quickly skimmed through it to see if I could use it and I found something so completely unexpected. It was a notebook Mari had gotten into and I had gotten so mad at her at the time for doing it. She had drawn several pictures throughout this notebook. These are the types of things I have left of her. Just her drawings. The reality is I miss her so much and that makes me miss her all that much more.

I know that one day the missing won’t be as strong but for now it is quite acute.

I love you baby girl and mommy misses you very much.

Love, Mommy

Thursday, December 17, 2009

The One

I sit here thinking
of the one not here,
the one not far from
my mind but ever present.

The one has a mind
like no one can fathom,
a mind all one's own
with no care in the world.

The mind can do
wondrous things,
to help us to cope
or simply get by.

However, the mind of the one
is all unique and blessed,
the one knows no wrong
or gets scared of the rest.

The one's fears are only
in the head of the one's dreams,
for this person may have seemed
to be unreal to those around.

The one is someone to follow,
to role your own life after,
as the one knows what
unconditional love is like no other.

How can we all learn
from the innocence of the one,
we'll never know in this lifetime
as the one is gone from this earth.

One day we’ll be reunited
and all happiness returned,
as we are living side by side
together for all eternity.

Again I start over by saying
I sit here thinking of the one not here,
the one not far from my mind
as SHE is ALWAYS ever present.

Wednesday, December 16, 2009

Bad Days They Come and Go

You know, I can sit here all month long and seem to be just fine. Then the 15th comes and something just seems to be just plain flat off. I can't seem to put my finger on it but it is just off. Then at some point during the day (or night) I realize the next day is the 16th.

Yesterday that happened to me again. The last 2 or 3 months I have been doing that. I cannot seem to figure out why I can't focus and then I realize the 16th was the next day, which is now today. Mari has been gone exactly 18 months or for a year and a half.

Then tomorrow will come and if it is like all the other 17th's I will be ok and back to focusing again.

I think I unconsciously try not to think about the 16th even though I know it's coming but ultimately doing this stops me from being able to concentrate on what's coming.

I have officially put the 15th and 16th in my calendar until July to make sure this does not happen again to where I feel blindsided. I figure, worst case scenario is I don't do anything 2 days out of the month. I don't think that is too bad.

Mommy loves you baby girl and she misses you very much.

Love, Mommy

Sunday, December 13, 2009

Thanksgiving

(This was actually written on November 26, 2009, Thanksgiving Day, but I have not been able to post it before now.)

Thanksgiving is a day where families and loved ones come together to spend time with one another. It’s a day I do not look forward to.

I used to love this time of year. When anyone first arrives, everyone wishes them a Happy Thanksgiving. Most are genuine while some it’s just what you are supposed to say this day. Like last year, I will nod my head in acknowledgement but I won’t say it back. I feel that saying “it” would be ungenuine on my part and why say something you really don’t mean. Please don’t get me wrong. I love Keith’s family with all my heart; I just don’t feel thankful without having Mar-Mar here. This day makes me just miss her more.

The thing I personally loved the most about Thanksgiving in the past was making my homemade pies. I would make everything from scratch to the best of my ability, to include the best tasting pie crust. I have always loved to make pies since I made my first one as an adult. People tell me they taste great. But to make them for this day is a whole other ball of wax. It means I would be making them to say I was thankful for the day when I am not. So this year we went to Dominick’s and purchased Sara Lee frozen pies: 2 pumpkin, 1 apple, and 1 cherry. I’m sure they will be just fine but I certainly did not feel like making them.

If I had my way, we would not even be going. All I get to do is go over to Keith’s parent’s house and put a fake smile on my face all day. We won’t talk about Mari. I feel like if we talk about Mari, everyone thinks I will fall apart and break like a porcelain doll because I cry. Keith and his family do not like to show emotions. That’s how they were all raised. However, I was raised that crying is just something you do. I cry when I get angry. I cry when I’m sad. I cry when I’m happy. I guess you could say it is how I show my emotions. Whereas I know Keith and his family are truly uncomfortable with that and become uncomfortable around those who do. You can’t fault them for this and this makes them who they are and I love every last one of them. But for me it means I have to put on my fake smile and pretend I am happy to be there when in reality I would rather just stay home for the day.

Now it comes down to eating dinner. Everyone gathers around the dining room table and says what they’re thankful for. Well, I HATE this part now. I HATE it with a passion. To say I am thankful is like I am saying I am “thankful” that Mari is gone. I tend to replace the word “thankful” with “grateful” instead. I know the word is a subtle difference but I can honestly say things I am grateful for. I have been able to say I am grateful I am still here and making it through without Mari being here with us. It has been the hardest thing I have ever done. However, in no way shape or form am I thankful for that as I want Mari here with me instead. I hope I am making sense.

The rest of the day will consist of being around each other, talking and doing whatever. Personally, I can’t wait until we are back home again by ourselves and we still have a little over an hour before we even will get there.

So, personally, I will wish everyone a very Grateful day.

I love you baby girl and Mommy misses you so much.

Love, Mommy